Home > Latest comments

Latest feedback and comments

Below are the most recent feedback and comments made on articles featured on this web site.

To read the article, click on the article name. To see the particular comment in place, click on the name of the person who made the comment.

If you would like to comment on an article, use the boxes at the bottom of each article page to submit your comments.

In response to the article "Ask the professional" (see Issue 14), naomi willems said...

Dear Etti

Thank you so much for your reply. We did end up buying the tripp trapp as could not find anything else we thourght would be suitable and even though I must admit to begin with we were a bit hesitant if this was the right thing or not,we are now really delighted with the chair. Our daughter is now 4, she can climb up and down by her self (we wanted something that she could be independant), and she loves being at the table with us. She sits very nicly on it, with her back straight. The only 2 things we are a bit concerned we have to watch out for are that a) she does not push herself back i.e away from the table and b) she does like sometimes to stand up on the chair and reach across the table, and if anything is around it may go flying across the room. In fact my husband liked it so much he bourght one for him self.

Thank you again, and about the bed. The sleep Apnea has really improved alot we got that seen too but she does like to still sleep sitting up and is still banging her head around when she falls, so we are still looking for a bed solution if anyone has any ideas for a 4year old.

Thank you very much

Regards
Naomi Willems

21 July 2010 19:12

In response to the article "Dermatologic Disorders in Down Syndrome" (see Issue 14), naomi willems said...

Thank you for a very informative article. Our daughter would get a really bad case of Atopic dermatitis on her cheeks which would usually come out for the first few years of her life around spring time. We tried homeopathy after the creams from the regular doctors did not work.

I was finally reccomended a natural cream by a religious doctor who lives in Jerusalem. His name is Dr Hemich. The cream is called Clear Cream and is endorced by the ministry of health .
It worked for us and now our daughter is 4 and occasionaly it comes back and we apply the cream and see very quick results.

To find out more you can e mail Dr Hemich at
hemich_y@netvision.net.il

The cream was advertised in the Homadia newspaer as well.

if you need a telephone number for where to buy it in Jerusalme or Tzfat I will be happy to help and onece again it worked for us.

Naomi Willems

21 July 2010 18:59

In response to the article "Proper Language" (see Issue 14), Chaim said...

Hello Sarah,

What I meant by the second part was that the way we refer to our children can often create a defining image in someone's mind. As the article pointed out, referring to someone as "a Down syndrome child" effectively defines that child in terms of the DS, instead of defining them as a valid, valuable human being who happens to have DS.

This is a very important issue, and one that should be given more prominence. I was just bothered that this article seemed to spend more time on an irrelevancy dressed up as fact, and relegate the genuinely important point to a follow-on.

Although attitudes have changed a lot in the last decade, there is still a lot of ignorance and misunderstanding over issues like DS, and discussions like the second one in this article are very valuable in bringing these issues to the front.

I hope this clarifies it. Thanks again for a great magazine!

20 June 2010 20:59

In response to the article "Proper Language" (see Issue 14), Sarah Sander - Editor said...

This is in response to the first comment: First, thank you so much for your time and feedback.
There is no right and wrong regarding the spelling of this syndrome. In general, I have found that certain words are spelled differently in the United States than they are in England, i.e. color vs colour. That same tolerance can be applied to Down vs. Down's. It seems that the US organizations representing the DS population are now advocating for 'Down' syndrome. As a US citizen, I am going along with it...
Please clarify what you meant by "Had you dropped the first bit, and concentrated on the second issue, which is a matter of societal importance, then this would have been an excellent article"
Thanks again and all the best, Sarah Sander

20 June 2010 20:05

In response to the article "Letter from an anguished mother" (see Issue 14), Chaim said...

Mrs Sandder, I would like to add on to the heartfelt words you gave.

Irrespective of how many other children (if any) that this mother has, I am saddened to think that she can feel so alone in what she describes as a frum community.

We also have a daughter with DS, but far from feeling alone and isolated, we were enveloped with warmth, love and support from the day we found out about her condition.

We live in a fairly large frum community, and there are probably around ten other DS children of various ages here (bli ayain horo), as well as a selection of children with other special needs.

There are organisations in place to give all kinds of support, from meals while you're in hospital to emotional support when you're having a hard day - as well as a lot in between.

I don't know where her community is, but maybe the author of this letter should see if anyone else around her is in a similar situation. Are there any other special kids around, DS or not?

To be blunt, if she lives in a community that can't give ehr the support she needs, then I would suggest she thinks about moving. That sounds very harsh, but chessed has always been one of the fundamental defining features of our kehillos, and if that's lacking where she is, she would probably be better off moving.

Obviously, without more information it's impossible to say, but I do want to make the point that a kehillo (however small) should support every single person living there. No-one should have to feel the way this mother does.

Thanks

20 June 2010 18:59

In response to the article "Proper Language" (see Issue 14), Chaim said...

For the purposes of a fair picture, it should be pointed out that the comment at the end of the first paragraph (the apostrophe noting possession) in this article is no basis for the claim that Down syndrome should not have an apostrophe s.

Alzheimer's disease was named after Dr Alois Alzheimer, who didn't have it. The "apostrophe as possession" is to show that she identified it. It is a mark of honour, not an implication that she had it.

The same goes for Asperger (or Asperger's) syndrome, which was named after Hans Asperger, who didn't have the syndrome.

Many other examples can be found, both in the medical word and beyond. A large number of animals are named after their discoverer or identifier, and use an apostrophe, even though the person who discovered or identified the creature wasn't a horse, or a monkey or whatever!

Whether you wish to use Down syndrome or Down's syndrome is a matter of personal choice. Anyone claiming that their way of referring to it is the correct one is showing intolerance.

This is not a criticism of your otherwise excellent magazine and web site. I just don't like people telling me that their way of doing something is the correct way when it is merely one choice from a selection of equally valid choices.

Had you dropped the first bit, and concentrated on the second issue, which is a matter of societal importance, then this would have been an excellent article. Sadly, the truly important issue was put second to something irrelevant.

Thank you again for your hard work, it is truly appreciated.

20 June 2010 17:52

In response to the article "Zeidy Gluck z’l" (see Issue 13) by Sarah Sander, Danny said...

Very moving, thanks

06 June 2010 19:00

In response to the article "Who Are You Calling Stupid?" (see Issue 13) by Alexandra K, Danny said...

Very sensible advice. Let's hope it's read!

03 June 2010 19:55

In response to the article "Grandparents' Page" (see Issue 8), Very nice site! said...

Very nice site!

25 May 2010 12:01

In response to the article "The Heart and Children with Down Syndrome" (see Issue 8) by Dr. Dan Schneider, Avrohom Yisroel said...

Just to follow up my own comment, Chaya Devoira is now 20 months old, and is just adorable. Bli ayin horo, she's doing really well, and the heart problems are a thing of the past.

Sure, we have occasional check-ups at the hospital, and they tell us that there is still a slight leak on one of the valves, but they assure us it's nothing major and may never even need attention. It doesn't even concern us now, we just accept it as a fact of life.

The heart problems, the operation and hospital stays all seem a lifetime away now. We thank Hashem Yisborach every day for our little princess, and look forward to many years of joy from her IY"H.

Hang in there, the nachas is amazing!

23 May 2010 23:05

In response to the article "They#ll take them" (see Issue 12) by R.N.-Yerushalayim , Ronit Elliott said...

what a beautiful article. Could you please help my family here in Israel to adopt a down syndrome baby?
we are chareidi, have wonderful children, live in the north of Israel and made alyiah 8 months ago from the USA

27 April 2010 10:37

In response to the article "It Worked For Us" (see Issue 3), Lisa Carlson said...

My son Cole had a similar problem. He also had a sireis of earaches to go with it. We started giving him a probiotic every day and occasion saline solution in the nose. He has also been off antibiotics for over 2 years and does not have runny nose.

02 December 2009 02:47

In response to the article "The Heart and Children with Down Syndrome" (see Issue 8) by Dr. Dan Schneider, Avrohom Yisroel Silver said...

As a parent of a child who has just undergone major open heart surgery for many of the defects described in this article, I can tell you that it's very frightening.

However, DON'T DESPAIR!!! Even though this surgery seems terrifying to us non-medics, the surgeons are used to it, and do it on a fairly routine basis.

We are not even three weeks after the surgery, and yet our baby is like a new child. Instead of the pale, weak baby who never fed, we have (bli ayin horo) a smiling happy baby who looks healthy and feeds well.

So if your baby is diagnosed with a heart defect, don't worry. He or she is in the hands of the Ultimate Doctor. It's rare for anything to go wrong with this sort of surgery, and it will make a huge difference to your baby.

05 March 2009 11:45

In response to the article "Hey Dads!!! Some Thoughts on Men and Grief " (see Issue 13) by Ian John, Avrohom Yisroel Silver said...

So I have a confession to make... I cried. It's been years since I've cried, after all, I'm 47 years old, a father of seven kids (bli ayin horo) and I have nothing to cry about.

Our special baby, our Chaya Devoira taught me how to cry. Not from grief, although that would have been OK too. I cried every time they stuck needles in her. I cried when I saw her hooked up to all those gruesome looking machines in the High Dependency Unit. I cried when I thought of what that life-saving operation actually entails.

She taught me to get in touch with my emotions, and you know what? I feel a better person for it. I can empathise with other people's tragedies more. I can feel a little bit of the pain of my fellow Yidden in eretz Yisroel when they are attacked. I can feel the pain when I see someone collecting for his sick child, or someone who needs to marry off his daughter.

Don't believe what they tell you, it's OK to cry :-)

18 January 2009 17:48

In response to the article "Zeidy Gluck z’l" (see Issue 13) by Sarah Sander, Avrohom Yisroel Silver said...

As we approach the tenth yortzheit of my very special Zeide, I found your article very welcome.

Thank you for writing this.

18 January 2009 17:37